05367nam a22005658i 45009781916704152IN-ChSCO20240416145055.0m|||||||||||||||||cr |n||||||||n240416s2024||||nyu|||||o|||||||||||eng||9781916704138(print)9781916704152(ebook)9781916704145(ePub)10.62859/9781916704138DOI(OCoLC)1425813491IN-ChSCOengrdaengK5197364.153223Waits, Taylor,author.Advocating for Queer and BIPOC Survivors of Rape at Public Universities :The #ChangeRapeCulture Movement /Taylor Waits, Kimiya Factory, Coreen Hale ; edited by Patrick Thomsen.The #ChangeRapeCulture MovementFirst edition.New York, N.Y. : Lived Places Publishing,2024.©20241 online resource (96 pages) :illustrations.texttxtrdacontentcomputercrdamediaonline resourcecrrdacarrierQueer and LGBT+ Studies, Gender Studies, Education StudiesThis is an open access publication, available online and distributed under the terms of BY-NC-ND.Includes bibliographical references and index.Cover -- Half Title -- Title Page -- Dedication -- Copyright Page -- Contents -- Trigger warning -- Introduction -- Learning objectives -- 1 The benefits of having autistic foster carers -- Why might autistic people make good foster carers? -- Cognitive strengths -- 2 Perceptual differences -- Attitude problem -- Masking -- Different initial premises -- Attempting to understand -- Predetermined expectations -- Can autistics have a sense of humour? -- Echolalia -- Reasonable adjustments -- 3 Executive functioning differences -- What is executive functioning? -- Working memory -- Planning and organisation -- Staying focused -- Impulse inhibition -- Time management -- Reasonable adjustments -- 4 Social differences -- The social aspect of fostering -- Spoon theory -- Social hangover -- Sensory aspect -- Small talk -- Words for information -- Info-​dumping -- Gossip -- Reasonable adjustments -- Events and occasions -- A day trip out: too much –​ we will not have the spoons for it -- Training sessions -- Foster carer support groups -- 5 Truth differences -- Gaslighting -- Twisting -- Triangulation -- Intentional omissions -- Projection -- Name calling -- Theories treated as fact -- Labelling -- Changing minds, or information, without telling anyone –​ making the new information the only information -- Using threats or coercion -- Disregarding verifiable facts -- Misdirection -- How this looks in practice as an autistic foster carer in social services -- Reasonable adjustments -- 6 Rule differences -- Is it or is it not a rule? -- Policy and procedure rules -- General rules on children or teenagers -- Timeframe rules -- Communication rule -- Reasonable adjustments -- 7 Autistic overwhelm -- Meltdown, shutdown, and burnout -- Meltdown -- Shutdown -- Autistic burnout -- Reasonable adjustments -- Meltdown -- Shutdown -- Burnout -- Conclusion -- Understanding -- Stress -- Empathy and double empathy issue -- Equality and legality -- Communication -- Reciprocal social interaction -- Some statistics -- What do we want in a foster carer? -- My top three wishes -- Recommended assignments and discussion questions -- References -- Recommended further reading -- Glossary -- Index.Open Access Electronic Book.Every survivor of sexual abuse has a story to tell. Set up in 2019 at the University of Texas at San Antonio by queer Black students, The #ChangeRapeCulture movement works to champion the national conversation about rape culture at American universities. Advocating for Queer and BIPOC Survivors of Rape at Public Universities documents the stories of BIPOC, LGBTQIA2S+ sexual violence survivors and offers theoretical groundings, model strategies, and practical solutions to aid understanding of rape culture at public universities, and advocate for survivors’ rights. Student-led and survivor centred, this book is ideal reading for students of Queer and LGBT+ Studies, Gender Studies, Education Studies, Social Work, and Rhetoric, as well as student activists and university administrators.Also issued in Print and PDF version.Lived Places PublishingPaperbackPurchase priceGBP25.99.EnglishDescription based on Publisher's website, viewed April 16, 2024.RapeSocial aspects.Sexual violence.Sex education.Electronic books.Factory, Kimiya,author.Hale, Coreen,author.Thomsen, Patrick,editor.Print version: Advocating for Queer and BIPOC Survivors of Rape at Public Universities : The #ChangeRapeCulture Movement.First edition.New York, N.Y. : Lived Places Publishing, 20249781916704138(OCoLC)1427684429Queer and LGBT+ Studies, Gender Studies, Education Studies (Lived Places Publishing)livedplacespublishinghttps://doi.org/10.62859/9781916704138 03645nam a22005538i 45009781916704459IN-ChSCO20241012145055.0m|||||||||||||||||cr |n||||||||n241012s2024||||nyu|||||o|||||||||||eng||9781916704435(print)9781916704459(ebook)9781916704442(ePub)10.62859/9781916704435DOI(OCoLC)1456827661IN-ChSCOengrdaengHV9105.S6364.3/6/08923Nolan, Kimberly,author.Getting out of South Carolina’s juvenile justice system :education for young incarcerated offenders /Kimberly Nolan ; edited by Ian Cummins and Louis Mendoza.Education for young incarcerated offendersFirst edition.New York, N.Y. : Lived Places Publishing,2024.©20241 online resource (100 pages) :illustrations.texttxtrdacontentcomputercrdamediaonline resourcecrrdacarrierOpen Access Titles, Carceral Studies, Education Studies"This is an open access publication, available online and distributed under the terms of a Creative Commons Attribution, Non-Commercial, No Derivatives 4.0 International license (CC BY-NC-ND)".Includes bibliographical references and index.Learning objectives -- Introduction -- Chapter 1 Entering the juvenile system -- Chapter 2 Incarceration in South Carolina: The system -- Chapter 3 Supporting incarcerated juveniles -- Chapter 4 Life inside -- Chapter 5 Recommendations for change -- References -- Index.Open Access Electronic Book.How can society provide better education services for young incarcerated offenders? In most cases they receive fewer hours of education than they were getting prior to incarceration, if any. Getting out of South Carolina’s Juvenile Justice System highlights the importance of prevention and community programming, as well as preparation for the return to mainstream society. Through stories from juveniles, parents, judges, prosecutors, and defense attorneys, author Kimberly Nolan addresses the issues within the juvenile justice system in South Carolina and offers ideas on how to support young offenders as they navigate both the transition to adulthood and community living. Offering a history of the system, lived experiences, and a review of advocacy groups and intervention programs, this book is ideal reading for students of Carceral Studies and Criminal Justice, Education, Social Justice, Psychology, Law, Sociology, and Social Work.Also issued in Print and PDF version.Lived Places PublishingPaperbackPurchase priceGBP25.99.EnglishDescription based on Publisher's website, viewed October 12, 2024.Juvenile justice, Administration ofSouth Carolina.Juvenile justice, Administration of.Education.Electronic books.Cummins, Ian,editor.Mendoza, Louis,editor.Print version: Getting out of South Carolina’s juvenile justice system : education for young incarcerated offenders.First edition.New York, N.Y. : Lived Places Publishing, 20249781916704435Open Access Titles, Carceral Studies, Education Studies (Lived Places Publishing)livedplacespublishinghttps://doi.org/10.62859/9781916704435 03454nam a22005418i 45009781916704664IN-ChSCO20251208145055.0m|||||||||||||||||cr |n||||||||n251208s2025||||nyu|||||o|||||||||||eng||9781916704640(print)9781916704664(ebook)9781916704657(ePub)10.62859/9781916704664DOI(OCoLC)1553844439IN-ChSCOengrdaengLC40371.042099423English, Rebecca,author.Canaries in the coalmine :Australian teachers who homeschool their children /Rebecca English, Gemma Troughton ; edited by Janise Hurtig.Australian teachers who homeschool their childrenFirst edition.New York, N.Y. : Lived Places Publishing,2025.©20251 online resource (180 pages) :illustrations.texttxtrdacontentcomputercrdamediaonline resourcecrrdacarrierEducation Studies"This is an open access publication, available online and distributed under the terms of a Creative Commons Attribution, Non-Commercial, No Derivatives 4.0 International license (CC-BY-NC-ND 4.0)".Includes bibliographical references and index.Acknowledgements -- Chapter 1 What is homeschooling anyway? -- Chapter 2 Our homeschooling teacher participants -- Chapter 3 Homeschooling versus traditional school: They are not the same thing -- Chapter 4 What do these data tell us about “school choice?” -- Chapter 5 Why would I want my child in that environment? -- Chapter 6 Tipping points -- Chapter 7Where to from here? -- References -- Index.Open Access Electronic Book.Drawing from interviews with early childhood, primary, and high school educators who homeschool, authors Rebecca English and Gemma Troughton explore the ways their experience influences their understanding of themselves as both teachers and parents. Canaries in the Coalmine delves into the reasoning behind following an alternative education path, the approaches taken by home educators, and how they navigate the differences from mainstream education. This book also invites readers to consider the wider implications of this movement: what does this choice mean for schools, the community, and the teacher shortage? This book is ideal reading for students and practitioners of Education, and Sociology, as well as Teachers, Policy Makers, Education Administrators, Home Educators, Parents, and Guardians.Also issued in Print and PDF version.EnglishDescription based on Publisher's website, viewed December 12, 2025.EducationAustralia.Education and stateAustralia.Educational sociologyAustralia.Electronic books.Troughton, Gemma,author.Hurtig, Janise,editor.Print version: Canaries in the coalmine : Australian teachers who homeschool their children.First edition.New York, N.Y. : Lived Places Publishing, 20259781916704640(OCoLC)1548249095Education Studies (Lived Places Publishing)livedplacespublishinghttps://doi.org/10.62859/9781916704664 03371nam a22005298i 45009781916704879IN-ChSCO20240910145055.0m|||||||||||||||||cr |n||||||||n240910s2024||||nyu|||||o|||||||||||eng||9781916704855(print)9781916704879(ebook)9781916704862(ePub)10.62859/9781916704862DOI(OCoLC)1453231031IN-ChSCOengrdaengLC4602371.9223Farrell, Emma,author.Irish University Students with Mental Health Difficulties :Experiences, Challenges and Supports /Emma Farrell ; edited by Janise Hurtig.Experiences, Challenges and SupportsFirst edition.New York, N.Y. : Lived Places Publishing,2024.©20241 online resource (166 pages) :illustrations.texttxtrdacontentcomputercrdamediaonline resourcecrrdacarrierOpen Access Titles, Disability Studies, Education StudiesThis is an open access publication, available online and distributed under the terms of BY-NC-ND.Includes bibliographical references and index.Chapter 1 Introduction -- Learning objectives -- Chapter 2 The Irish context -- Learning objectives -- Chapter 3 Transition to higher education -- Learning objectives -- Chapter 4 Disability support -- Learning objectives -- Chapter 5 The lived experience of navigating higher education with a mental health difficulty -- Learning objectives -- Chapter 6 Analysis, implications, and reflections -- Learning objectives -- Appendix -- Recommended assignments -- Notes -- References -- Index.Open Access Electronic Book.How can universities better support students who are struggling with their mental health? Drawing on hours of in-depth interviews, this book examines the lived experiences of students with mental health difficulties in higher education. Author Emma Farrell aims to illuminate the experience of navigating the transition to university, accessing support, managing coursework and expectations, while also forming relationships, identity, and a sense of belonging. Emphasising the importance of the student voice in improving student well-being, this book is ideal reading for students of Education, Mental Health, Psychology, Sociology, and Cultural Anthropology.Also issued in Print and PDF version.Lived Places PublishingPaperbackPurchase priceGBP25.99.EnglishDescription based on Publisher's website, viewed September 10, 2024.Students with mental disabilitiesEducation.Special education.Electronic books.Hurtig, Janise,editor.Print version: Irish University Students with Mental Health Difficulties : Experiences, Challenges and Supports.First edition.New York, N.Y. : Lived Places Publishing, 20249781916704855(OCoLC)1453285373Open Access Titles, Disability Studies, Education Studies (Lived Places Publishing)livedplacespublishinghttps://doi.org/10.62859/9781916704862 03891nam a22005538i 45009781916985292IN-ChSCO20250902145055.0m|||||||||||||||||cr |n||||||||n250902s2025||||nyu|||||o|||||||||||eng||9781916985278(print)9781916985292(ebook)9781916985285(ePub)10.62859/9781916985292DOI(OCoLC)1534454682IN-ChSCOengrdaengHV640362.87/8323Mude, William,author.Possibilities of educational pathways to refugee resettlement :a personal journey from Kakuma refugee camp to Australia /William Mude, Sally Baker ; edited by T. Alexander Aleinikoff & Laura Hammond.A personal journey from Kakuma refugee camp to AustraliaFirst edition.New York, N.Y. : Lived Places Publishing,2025.©20251 online resource (210 pages) :illustrations.texttxtrdacontentcomputercrdamediaonline resourcecrrdacarrierForced Migration Studies, Education StudiesThis is an open access publication, available online and distributed under the terms of Attribution-NonCommercial-NoDerivs 4.0 International license (CC-BY-NC-ND 4.0).Includes bibliographical references and index.Glossary of abbreviations -- List of figures -- Preface -- Learning objectives -- Chapter 1 The need for complementary education pathways for the growing numbers of refugees -- Chapter 2 Becoming a refugee -- Chapter 3 How did seeking refuge and education come together -- Chapter 4 Life in Canada as a recipient of the Student Refugee Program -- Chapter 5 My life in Australia -- Chapter 6 Lessons from William -- Conclusions -- Recommended student projects and assignments -- Notes -- References -- Recommended further readings -- Index.Open Access Electronic Book.Through a series of vignettes, author William Mude traces his personal journey from schooling in a refugee camp in Uganda, to a serendipitous connection in Kakuma refugee camp in Kenya, and his subsequent career in public health and academia in Australia, to demonstrate the pivotal role education has played in transforming his life, and the resilience of the human spirit. Highlighting the struggles refugees face, and how education can be a beacon of hope to many, Possibilities of Educational Pathways to Refugee Resettlement provides insights into intragovernmental work around durable solutions, and how this can be enhanced through advocacy. A compelling narrative that illuminates the plight of refugees and inspires support for refugee education programmes, this book is ideal reading for students of Forced Migration and Refugee Studies, Migration Studies, Development Studies, Education Studies, Politics, Public Health, and Sociology.Also issued in Print and PDF version.EnglishDescription based on Publisher's website, viewed September 02, 2025.RefugeesServices for.Humanitarianism.Kakuma (Kenya : Refugee camp)Electronic books.Baker, Sally,author.Aleinikoff, T. Alexander,editor.Hammond, Laura,editor.Print version: Possibilities of educational pathways to refugee resettlement : a personal journey from Kakuma refugee camp to Australia.First edition.New York, N.Y. : Lived Places Publishing, 20259781916985278(OCoLC)1534335305Forced Migration Studies, Education Studies (Lived Places Publishing)livedplacespublishinghttps://doi.org/10.62859/9781916985292 03570nam a22005778i 45009781916985339IN-ChSCO20250516145055.0m|||||||||||||||||cr |n||||||||n250516s2025||||nyu|||||o|||||||||||eng||9781916985339(print)9781916985339(ebook)9781916985346(ePub)10.62859/9781916985353DOI(OCoLC)1513423189IN-ChSCOengrdaengHB206732523Abbasi, Khadija,author.Displacement of the Hazara people of Afghanistan :complex histories /Khadija Abbasi, Reza Hussaini, Atefeh Kazemi, Abdullah Mohammadi ; edited by T. Alexander Aleinikoff & Haura Hammond.Complex historiesFirst edition.New York, N.Y. : Lived Places Publishing,2025.©20251 online resource (174 pages) :illustrations.texttxtrdacontentcomputercrdamediaonline resourcecrrdacarrierMiddle Eastern Studies, Forced Migration Studies, Asian StudiesThis is an open access publication, available online and distributed under the terms of Attribution-NonCommercial-NoDerivs 4.0 International license (CC-BY-NC-ND 4.0). Includes bibliographical references and index.Learning objectives -- Chapter 1 Introduction -- Chapter 2 A Smuggler’s story: Survival and necessity in Afghan migration -- Chapter 3 Living on the doorstep: The Golshahr Ghetto -- Chapter 4 ‘Return’ as new exile -- Chapter 5 Continuous mobility: Pains and possibilities -- Chapter 6 Lessons learnt -- Recommended projects -- Notes -- References -- Recommended watching -- Index.Open Access Electronic Book.Displacement of the Hazara People of Afghanistan uses lived experiences to explore the often-neglected facets of migration: that sometimes one can be a migrant without moving, that many migrants are forced to move multiple times, that the experience of migration is often intertwined with that of racism and rejection. By offering stories from different locations including smuggling across borders, seeking asylum in Europe, and facing repatriation, this book demonstrates how rejection and persecution can target different aspects of Hazara identity. Presenting stories that challenge the dominant narratives around forced migrants, this book is ideal reading for students of Forced Migration and Refugee Studies, Sociology, Politics, and Middle Eastern Studies, as well as policy makers.Also issued in Print and PDF version.EnglishDescription based on Publisher's website, viewed May 16, 2025.Forced migration.Refugees.Asylum, Right of.Electronic books.Hussaini, Reza,author.Kazemi, Atefeh,author.Mohammadi, Abdullah,authorAleinikoff, Alexander,editor.Hammond, Haura,editor.Print version: Displacement of the Hazara people of Afghanistan : complex histories.First edition.New York, N.Y. : Lived Places Publishing, 20259781916985339(OCoLC)1519586544Middle Eastern Studies, Forced Migration Studies, Asian Studies (Lived Places Publishing)livedplacespublishinghttps://doi.org/10.62859/9781916985353 03486nam a22005058i 45009781917503327IN-ChSCO20250728145055.0m|||||||||||||||||cr |n||||||||n250728s2025||||nyu|||||o|||||||||||eng||9781917503303(print)9781917503327(ebook)9781917503310(ePub)10.62859/9781917503327DOI(OCoLC)1526626299IN-ChSCOengrdaengHM671303.3/7223Goldstein, Tara,author.Léa Roback :Quebec social justice activist /Tara Goldstein ; edited by R. Anna Hayward.Quebec social justice activistFirst edition.New York, N.Y. : Lived Places Publishing,2025.©20251 online resource (184 pages) :illustrations.texttxtrdacontentcomputercrdamediaonline resourcecrrdacarrierJewish Studies, Activism and Social Movement Studies, Gender StudiesThis is an open access publication, available online and distributed under the terms of Attribution-NonCommercial-NoDerivs 4.0 International license (CC-BY-NC-ND 4.0).Includes bibliographical references and index.Acknowledgements -- Warning -- Learning objectives -- Chapter 1Léa Roback: Her life and times (1903–2000) -- Chapter 2Beauport and Montreal: Family and community life (1905–1929) -- Chapter 3Berlin and Montreal: Political learning and Communist Party work (1929–1958) -- Chapter 4Montreal: Fighting for workers’ rights (1936–1952) -- Chapter 5Montreal: Fighting for women’s rights (1933–2000) -- Chapter 6Léa Roback: Growing older (1988–2000) -- Notes -- Discussion questions -- References -- Recommended further reading -- Index.Open Access Electronic Book.Léa Roback (1903-2000) gained renown for her seven decades of activism in Quebec, particularly championing union rights and women rights. Yet, despite her significant accomplishments no English-language biography exists. In our current geo-political climate, marked by polarization and lack of dialogue, documenting Roback's ability to transcend linguistic, religious, cultural, and class boundaries in pursuit of social justice is inspiring.This biography, based on interviews between Roback and filmmaker Sophie Bissonette, sociologist Nicole Lacelle, journalist Merrily Weisbord and others, promises to engage students, educators in social justice-oriented fields, Equity Studies, Gender Studies, Education Studies, Canadian Studies, Canadian History courses and all those who seek justice and enthusiasm from a life-long human rights activist.530 \\Also issued in Print and PDF version.EnglishDescription based on Publisher's website, viewed July 28, 2025.Social justice.Social reformers.Electronic books.Hayward, R. Anna,editor.Print version: Léa Roback : Quebec social justice activist.First edition.New York, N.Y. : Lived Places Publishing, 20259781917503303(OCoLC)1525998071Jewish Studies, Activism and Social Movement Studies, Gender Studies (Lived Places Publishing)livedplacespublishinghttps://doi.org/10.62859/9781917503327 11991nam a22005298i 45009781917503716IN-ChSCO20260304145055.0m|||||||||||||||||cr |n||||||||n260304s2026||||nyu|||||o|||||||||||eng||9781917503693(print)9781917503716(ebook)9781917503709(ePub)10.62859/9781917503716DOI(OCoLC)IN-ChSCOengrdaengHF5549.5.C35658.3/12423Nyadoi, Priscilla,author.Career growth for females in sciences, the challenges, opportunities and experiences /Priscilla Nyadoi ; edited by Jan Etienne and Reham ElMorally.First edition.New York, N.Y. : Lived Places Publishing,2026.©20261 online resource (210 pages) :illustrations.texttxtrdacontentcomputercrdamediaonline resourcecrrdacarrierGender Studies"This is an open access publication, available online and distributed under the terms of a Creative Commons Attribution, Non-Commercial, No Derivatives 4.0 International license (CC-BY-NC-ND 4.0)".Includes bibliographical references and index.Cover -- Half-Title Page -- Title Page -- Copyright Page -- Abstract -- Table of Contents -- Contributors -- Part I Learning from the past to the present: Experiences, challenges and opportunities -- Introduction -- 1 Reflecting on experiences and lessons learned from a university engaged in training and mentoring women in sciences for career growth advancement -- 2 Personal experiences on career growth for females in sciences as shared by a female-top rated African scientist -- Navigating personal and professional challenges -- Key strategies for career success -- Foundations for a thriving career -- 3 Experiences and lessons for career growth for females in sciences from the perspectives of educators in higher institutions of learning -- The challenge from the trainer’s desk -- The trainer’s toolkit: Strategies for building an inclusive system -- Rewrite the curriculum and rethink how we teach -- Build robust mentorship and networking programs -- Drive institutional policy reform -- Foster a safe and supportive culture -- Conclusion: A collaborative mission -- 4 Experiences and lessons for career growth for females in sciences: Perspectives of educators in lower levels of education (primary school) -- Introduction -- The core challenge: Gendered perceptions of science -- Opportunities arising from a niche expertise -- Systemic and environmental barriers -- Recommendations for improvement -- Part II Learning from the past and the present, experiences, challenges and opportunities underlying career growth for females in sciences, perspectives from research -- Introduction -- 5 Balancing family and career: Strategies for female doctors in Uganda public medical services -- Introduction -- The heart of the matter: challenges for Uganda’s female doctors -- The core conflict: Culture versus career -- The high stakes of imbalance -- How we know this: The research method -- Findings from the field -- The challenges: A three-pronged problem -- Response: Strategies for coping -- Recommendations: Building a more supportive system -- Conclusion: A path forward -- 6 Local leaders and girl child education: Lessons from Kampango Primary School in Karamoja region, Uganda -- Introduction -- The Karamoja context: A legacy of disparity -- The power of local leadership: Shifting hearts and minds -- Findings at a glance: Key data from the study -- Actions and initiatives: How local leaders make a difference -- Conclusion: A shared responsibility -- 7 Review of the experiences, challenges and opportunities for women in the energy sector: Women in Uganda’s oil and gas industry in perspective -- Introduction: The new frontier for women in energy -- A brief history: From “Rosie the Riveter” to Africa’s oil fields -- The Ugandan context: A snapshot in numbers -- Portraits of progress: The women shaping Uganda’s oil sector -- Opportunities on the horizon -- Persistent challenges -- Conclusion: An equitable and sustainable future -- 8 The ultimate rise of women in STEM fields -- Introduction: A passionate plea -- The problem in three pictures -- The biggest barrier: “We’re good at more than just baking” -- Portraits of power: The Amazon warriors -- A call to action: Plant the seed and watch it grow -- 9 Perspectives from Kenya -- Introduction -- The STEM gender gap: From global problem to local reality -- The Kenyan context: Good policies, stubborn barriers -- How we know this: The research method -- Findings: The obstacle course for women in STEM -- Forces for change: Mentors, role models, and policy -- Conclusion and recommendations: A blueprint for equity -- 10 Perspectives from India -- Introduction -- The double bind: Navigating culture and career in Indian physics -- The first hurdle: Societal and cultural expectations -- The second hurdle: Institutional barriers -- Forging a new path: Opportunities for empowerment -- Conclusion: Unlocking India’s full scientific potential -- 11 Empowering women in science for a sustainable future: A global perspective -- Introduction -- The global landscape: A snapshot in numbers -- The obstacle course: Why the gender gap persists -- Portraits of progress: Stories of impact -- The toolkit for change: Strategies for empowerment -- Conclusion: An equation we can’t afford to get wrong -- 12 Galaxies of potential: Encouraging females in the cosmos of physics -- Introduction: A universe of untapped talent -- Ghosts in the machine: The invisible pioneers of physics -- The leaky pipeline: Why does physics lose so many women? -- The problem starts early: Education and stereotypes -- The obstacle course of academia: Bias and hostile environments -- The double bind: Work-life balance -- Fixing the pipeline: A toolkit for an inclusive future -- Conclusion: A universe of potential -- 13 Shared journeys: Experiences of women in the sciences in East Africa -- Introduction -- The shared journey: Experiences of women in East African science -- A landscape of opportunity -- The persistent challenges -- Conclusion: A call for systemic change -- 14 Reflections on perceived role models and personal experiences -- Introduction -- My foundation: A mother and a question -- Bringing science to life: My school experience -- The double-edged sword: Opportunities and challenges -- The opportunities -- The challenges -- Conclusion: It takes a village -- Recommendations -- 15 Lived experiences of females in sciences, a panel discussion -- Introduction -- Franny Martha Alaroker: Overcoming trauma and the double burden -- Amel-Elsati Mustafa: Literacy, progress, and a ray of hope -- Nosiba Abd Elhaleem: Finding purpose in science -- Part III Personal narratives and role models in science -- 16 Not just a man’s job: Building a life in biomedical engineering -- Introduction -- From disappointment to redirection -- Professional development and strategic networking -- Navigating a challenging career path -- Confronting societal and gender-based challenges -- Recommendations for women in STEM -- 17 Women in engineering experience -- Introduction -- Origins and a resilient academic path -- Innovation and career-defining moments -- Navigating systemic and personal challenges -- Conclusion: Paving the way forward -- 18 Perseverance -- Introduction -- A constant struggle for education -- A life-altering personal challenge -- Navigating university against the odds -- Core message: Never give up -- 19 A student’s personal experiences -- Introduction -- The onset of a life-altering crisis -- Family betrayal and a mother’s protection -- Social rejection and professional setbacks -- A turning point at university -- Conclusion and key lessons -- 20 Personal experiences -- Introduction -- Navigating educational hurdles -- Transition to work and the drive for professionalization -- Lessons learned and advice -- 21 Personal experience -- The broader context: Women’s economic emancipation in Uganda -- A Personal narrative: Opportunities amidst poverty -- Persistent challenges -- 22 Personal experience -- Introduction -- The gendered digital divide: From past to present -- The dangers and challenges of technology for girls -- Conclusion and recommendation -- 23 My life experiences in primary as a girl -- A holistic learning experience -- Navigating simple, everyday challenges -- Opportunities for growth -- Recommendations from a child’s perspective -- Part IV Further reflections and readings -- 24 Not just a man’s job: Building a life in biomedical engineering -- Introduction -- Professional development opportunities -- Challenges -- Recommendations -- 25 Women in engineering experience -- Introduction -- How it all started -- Leadership experience -- Innovation -- Engineering work involvement -- Challenges -- Conclusion -- 26 Perseverance -- 27 Career growth for females in sciences: Experiences, opportunities and challenges -- Challenges -- Opportunities -- Conclusion: Educate a female child for a better future -- Acknowledgement -- 28 Experiences, challenges and opportunities from primary school to work -- 29 Women in the context of economic prosperity -- 30 The girl-child in the era of digitalization -- 31 My life experiences in primary as a girl -- Recommendation -- References -- Reading assignments -- Part I Reflection questions -- Part II Reflection questions -- Reflection questions for parts III and IV -- Acknowledgement -- Index.Open Access Electronic Book.Career Growth for Females in Sciences: The Challenges, Opportunities and Experiences brings together leadership perspectives, panel discussions, original research, and powerful lived experiences to examine the realities shaping women’s academic and professional journeys in scientific fields. As the second volume in a growing series, this book deepens the conversation on gender equity in science by exploring the structural, cultural, and personal factors that influence career progression. Across four thoughtfully curated chapters, contributors examine themes such as patriarchy, cultural stereotyping, faith, mentorship, resilience, and institutional support systems. Voices from academia, research institutions, and professional practice illuminate both the barriers women face and the strategies that enable success. The volume also raises critical questions about whether these challenges are unique to women or reflective of broader systemic issues in scientific careers. Blending research, expert insights, and personal narratives, this book offers evidence-informed reflections to guide policy, institutional reform, and individual empowerment. It is ideal for students and scholars in gender studies and STEM education, academic leaders, policymakers, research institutions, professional development programs, and practitioners committed to advancing equity and leadership opportunities for women and girls in the sciences.Also issued in Print and PDF version.EnglishDescription based on Publisher's website, viewed March 04, 2026.Career development.Women in Science.Gender and Development.Electronic books. Etienne, Jan,editor.ElMorally, Reham,editor.Print version: Career growth for females in sciences, the challenges, opportunities and experiences.First edition.New York, N.Y. : Lived Places Publishing, 20269781917503693(OCoLC)1566932815Gender Studies (Lived Places Publishing)livedplacespublishinghttps://doi.org/10.62859/9781917503716 12448nam a22005658i 45009781917566124IN-ChSCO20260411145055.0m|||||||||||||||||cr |n||||||||n260411s2026||||nyu|||||o|||||||||||eng||9781917566124(print)9781917566124(ebook)9781917566131(ePub)10.62859/9781917566148DOI(OCoLC)1588633996IN-ChSCOengrdaengRF292.8362.4/1/09223Watharow, Annmaree,author.Usher syndrome :about us, by us /Annmaree Watharow, Emily Shepard, Emma Boswell ; edited by Damian Mellifont.About us, by usFirst edition.New York, N.Y. : Lived Places Publishing,2026.©20261 online resource (344 pages) :illustrations.texttxtrdacontentcomputercrdamediaonline resourcecrrdacarrierDisability Studies"This is an open access publication, available online and distributed under the terms of a Creative Commons Attribution, Non-Commercial, No Derivatives 4.0 International license (CC-BY-NC-ND 4.0)".Includes bibliographical references and index.Cover -- Half-Title Page -- Title Page -- Copyright Page -- Acknowledgements -- Abstract -- Table of Contents -- Learning objectives -- 1 About us, by us -- Introduction -- Annmaree -- Emma -- Emily -- Usher syndrome -- The knowledge gaps -- Why now? -- Why us? -- Deafblindness-dual sensory impairment -- Identity -- A brief note on Deafblind culture -- Model of disability -- How to use this book -- 2 The Usher syndrome basics -- Introduction -- Data -- Types of Usher -- Emma -- Diagnosis -- Hearing loss: More about sensorineural hearing loss -- Annmaree -- Vision loss: More about retinitis pigmentosa -- Annmaree -- Balance disorder: More about vestibular dysfunction -- Genetics of Usher syndrome -- Treatments and cures -- Consequences of Usher -- Important consideration -- Deafblindness-dual sensory impairment -- Definition -- 3 Usher syndrome, genetics and more -- Introduction -- Usher syndrome types -- Usher syndrome type 1 -- Usher syndrome type 2 -- Usher syndrome type 3 -- Diagnostic pathways and considerations -- Newborn hearing screening -- Genetic testing -- Early intervention -- Audiological intervention -- Vestibular dysfunction -- Fatigue -- More on genetic diagnoses -- The need for collaboration and research balance -- The role of the geneticist and genetic counsellor -- Geneticist -- A geneticist is a medical doctor who specialises in the study of genes, genetic variations and heredity in living organisms. Geneticists focus on understanding how genes influence health and disease, playing a key role in diagnosing and treating genetic conditions. The geneticist is responsible for ordering appropriate genetic tests based on the patient’s clinical symptoms and family history. -- Genetic Counsellor -- A genetic counsellor is a healthcare professional with specialist knowledge in human genetics, counselling and health communication. They provide critical information and support to individuals and families affected by genetic conditions. Genetic counsellors typically work as part of a multidisciplinary team that includes a geneticist. The genetic counsellor meets with the family to explain the geneticist’s findings in a way that is easy to understand. They discuss inheritance patterns, risk factors for other family members, and the long-term implications of the condition. They offer support to help individuals and families navigate the emotional aspects of the diagnosis. -- Usher syndrome research -- Clinical Research -- Gene therapy -- Gene agnostic treatments -- Natural history studies -- Registries -- Usher syndrome is a spectrum -- Annmaree -- Ongoing challenges -- 4 Complexities and challenges of diagnosis -- Introduction -- Navigating the impact of diagnosis -- Emily -- The pros and cons of an early diagnosis -- Underdeveloped pathways for paediatric Usher syndrome -- Low expectations -- No longer living fully in the present -- Generational perspectives and the question of independence -- Challenges of diagnosis -- Emma -- Diagnostic clarity -- How much information is right? -- The research results -- Initial reactions -- To summarise -- Annmaree -- Diagnosis disclosure -- Annmaree -- Emma -- Chloe -- Emily -- How and when to tell: A guide for parents -- The following information was developed by UsherKids Australia and is used with permission: -- Give yourself time -- Tailor it to your child -- Younger children -- Older children -- WHO should have the conversation? -- WHEN is the right time? -- Focus on what’s relevant now -- Be honest but hopeful -- Use analogies and visuals -- Avoid vague reassurances -- Help your child to develop confidence and independence -- Support children with Usher syndrome every step of the way -- Ongoing challenges -- When disability is mistaken for incapacity -- Emma -- 5 Parenting 1: Complexities of parenting children with Usher syndrome -- Emily -- Historical context: Parenting children with Usher syndrome -- Diana also recalls ‘the body worn hearing aid, and headphones during Claire’s lip-reading lessons with amplified sounds’. -- Early intervention and the parental role -- Psychological and social impact on parents -- Siblings and family dynamics -- Navigating school and education -- Adolescence and independence -- Driving with Usher syndrome -- Understanding the licensing process -- Outcome of medical review -- Ongoing vision monitoring -- Navigating the process together -- Conclusion -- 6 Parenting 2: Parenting, psychosocial needs and perspectives -- Introduction -- Emily -- The clinical awareness of Usher syndrome among allied health professionals -- The support needs of parents of young children with Usher syndrome -- Social needs -- Informational needs -- Practical needs -- Emotional needs -- The experiences and support needs of youth with Usher syndrome -- Research priorities of the inherited retinal disease community in Australia -- A multidisciplinary clinic approach -- Parenting as well as living with Usher syndrome -- Annmaree -- Emma -- Conclusion -- 7 Siblings, spouses, offspring and supporters -- Introduction -- Siblings -- Khloe -- Partners and family members -- George -- Children of parents with Usher syndrome -- Tom -- Supporters and carers -- Jess -- Liz -- Positives of living in an Usher family -- Conclusion -- 8 Complexities of health and well-being for people with Usher syndrome, their families and carers -- Introduction -- Health and well-being challenges for individuals with Usher syndrome -- Diagnosis: Challenges, changes and consequences -- Diagnosis is an emotional journey -- Communication risks -- Health literacy for people with Usher syndrome -- Social health threats -- Physical health threats -- Psychological and cognitive risks -- Delirium -- Annmaree -- Public health threats -- Growing older -- Multiple disability and co-occurring conditions -- Emma -- Annmaree -- Complexities from balance disorder -- Fatigue and fluctuation in function -- Fatigue syndrome -- Impact on the family: Living with someone with Usher syndrome -- Carer well-being -- Conclusion -- 9 Complexities of health and well-being: Seeing things that aren’t real -- Introduction -- Visual hallucinations -- About Charles Bonnet -- Risk factors -- How common is Charles Bonnet syndrome? -- Annmaree -- Nature and forms of visual hallucinations -- Adjustment -- Mutability -- Causal mechanisms -- Challenges -- Management -- Conclusion -- 10 Communication 1: Relational aspects of language and assistive devices -- Introduction -- Annmaree -- Receptive/lipreading/facial expression/handshapes -- Emma -- Annmaree -- Modifications to communication -- Emma -- Annmaree -- Not all interpreters are deafblind communication skilled -- Reduced vision, reduced signing frame -- Communication methods and equipment -- Communication failures rife in health and social care -- Examples in the health sector -- The importance of redressing communication failures -- Conclusion -- 11 Communication 2: Healthcare and the role of social-haptic communication -- Introduction -- Communication, healthcare and Usher syndrome -- Russ -- Hospital haptices -- Cochlear implant (CI) operation -- Sao Paulo, Brazil, 2015 -- Using hospital haptices in healthcare settings -- Identification of professional role -- Confirmation -- Emotions -- Different measurements -- Duration -- Haptemes -- Harnessing our own capacities -- Further considerations -- One-to-one communication by narrow vision field and using hearing aids -- To get attention, distance, and direction -- Conclusion -- 12 Communication 3: An interpreter’s perspective -- Introduction -- About Ros -- Empathy in communication -- In the shoes of a person with Usher syndrome -- Always use accredited interpreters -- Sarah -- Law and policy -- Working with interpreters -- Spoken communication strategies -- Esther -- Visual communication strategies -- Note on deaf relay interpreters -- Deafblind community and culture -- Taboos -- Setting up space for communication -- First meeting -- Adaptations to approach -- Adaptations to environment -- Vincent -- Communication strategies to try -- Isabel -- Seek to understand the person -- Robert -- Vance -- Ben -- Boosting communication skills -- Conclusion -- 13 Better health and well-being -- Introduction -- The triple threats -- An inclusive approach to better health and well-being: Eight pillars -- 1. Recognition -- 2. Communication -- 3. Accessibility -- 4. Collaborative care -- 5. Preparedness -- 6. Supporting individuals and families/carers -- 7. Empowerment -- 8. Breaking binaries -- A special note: Understanding and supporting the grief journey -- It’s unpredictable -- It’s complicated -- Ontological security: The sense of safety -- Simon -- Impacts of Usher syndrome -- Living with moving goalposts -- The ongoing grief/loss cycle -- Coping strategies -- Technology and support -- Family and relationships -- Final thoughts -- Conclusion -- 14 Supports for better everyday living -- Introduction -- Support in everyday life -- Work life -- Getting around -- Reading vision and Braille -- Accessing support -- Support at medical appointments -- Human support is critical -- Conclusion -- 15 Snapshots of diversity and capabilities in the Usher community -- Introduction -- Bea -- Traynor -- Jane -- Natalie -- Peter -- Jacqueline -- Stephen -- Gail -- Wes -- Conclusion -- Suggested learning activities -- References -- Resources -- Recommended further reading -- Index.Open Access Electronic Book.Usher Syndrome: About Us, by Us - is a comprehensive resource created by those with lived experience, lived knowledge and lived expertise of Usher syndrome. It explores the syndrome’s prevalence, types, and the challenges of parenting, learning, working, and aging with Usher syndrome. The book also covers essential communication strategies and wellness practices. Designed for health and social care students, professionals, practitioners and policymakers, it highlights the lived experiences and needs of individuals with Usher syndrome, ensuring a better understanding among social contacts, colleagues, and support workers. Ideal for professionals and students in disability studies, health and social care, educators, policymakers, and families seeking deeper insights into living with Usher syndrome.Also issued in Print and PDF version.EnglishDescription based on Publisher's website, viewed May 11, 2026.Usher's syndrome.Usher's syndromePsychological aspects.Deafblind peopleCare.Electronic books.Shepard, Emily,author.Boswell, Emma,author.Mellifont, Damian,editor.Print version: Usher syndrome : about us, by us.First edition.New York, N.Y. : Lived Places Publishing, 20269781917566124(OCoLC)1566928790Disability Studies (Lived Places Publishing)livedplacespublishinghttps://doi.org/10.62859/9781917566148 12393nam a22005538i 45009781918026290IN-ChSCO20260402145055.0m|||||||||||||||||cr |n||||||||n260402s2026||||nyu|||||o|||||||||||eng||9781918026276(print)9781918026290(ebook)9781918026283(ePub)10.62859/9781918026276DOI(OCoLC)1578161589IN-ChSCOengrdaengRA555362.84994023Tukuitonga, Sir Collin,author.Understanding Pacific peoples health and wellbeing challenges in Aotearoa New Zealand /Sir Collin Tukuitonga, Roannie Ng Shiu, Patrick Thomsen ; edited by Moeata Keil & Patrick Thomsen.First edition.New York, N.Y. : Lived Places Publishing,2026.©20261 online resource (414 pages) :illustrations.texttxtrdacontentcomputercrdamediaonline resourcecrrdacarrierPacific Islander Studies"This is an open access publication, available online and distributed under the terms of a Creative Commons Attribution, Non-Commercial, No Derivatives 4.0 International license (CC-BY-NC-ND 4.0)".Includes bibliographical references and index.Cover -- Half-Title Page -- Title Page -- Copyright Page -- Dedication -- Table of Contents -- Foreword -- Contributors -- Book Editors -- Chapter Authors -- Setting the scene: Pacific health research in Aotearoa-New Zealand -- Chapter summary -- Introduction -- Population trends and patterns -- Socioeconomic trends -- Health trends -- Research and data needs for a healthy and informed future -- References -- Pacific identity and wellbeing -- Chapter summary -- Introduction -- Clarity between ethnicity and ethnic identity -- Psychological perspectives on ethnic identity and wellbeing -- Ethnic identity -- Wellbeing -- Pacific identities and wellbeing -- Components of Pacific identities -- Wellbeing -- Conclusion -- References -- The health of children and young people -- Chapter summary -- Introduction -- Determinants of children and young people’s health -- Pacific child and adolescent deaths -- Neonates: Preparing for life -- Pacific adolescents and young people -- Illness and disease -- Respiratory conditions -- Infectious diseases -- Optimising development and potential -- Development and behaviour -- Family violence and child abuse -- Conclusion -- References -- The health of women and reproductive health -- Chapter summary -- Introduction -- Pacific women in gynaecology -- Impact of obesity -- Fertility -- Cancers -- Endometrial cancer -- Other cancers -- Contraception -- Pacific women in obstetrics -- Antenatal -- Place of birth -- Risk factors -- Obesity -- Maternal complications of obesity -- Obesity and increased risk of gestational diabetes -- Obesity and increased risks of hypertensive disorders in pregnancy -- Complications of obesity in pregnancy for the baby -- Other birth outcomes of note -- Maternity clinical indicators trends -- Pacific women have reported higher rates of complications -- Perinatal and maternal mortality review committee report 2018 -- Conclusions -- References -- Complex criticalities: An introduction to Pacific Rainbow+ communities health and wellbeing in Aotearoa-New Zealand and the Pacific -- Chapter summary -- Introduction -- The ABCs of labels and Rainbow+ health and wellbeing -- Heterosexism and heteronormativity -- LGBT and the QIA+ -- MVPFAFF+ -- Intersectionality -- The role of discrimination in the health and wellbeing of Pacific Rainbow+ communities in Aotearoa-New Zealand -- Rainbow health and wellbeing research in Pacific contexts -- Snapshot: Fiji -- Snapshot: Papua New Guinea -- Conclusion -- Further Reading -- References -- Tagata Sa‘ili Malo: The story of the Pacific disability community -- Chapter summary -- Introduction -- Background: Whakawhanaungatanga -- Mainstream disability community -- Pacific people and disability -- Te Ao Aotearoa -- Shift one: New Zealand disability strategy, 2001 -- Shift two: New Zealand disability strategy 2016–2022 -- The opportunity -- Shaping a Pacific model of disability support -- Activation life-giving vision -- Vision: Tagata Sa’ilimalo – The pursuit of success, the celebration of achievement, of individual, and collective vitality. -- Vision in action: Soalaupule – self-determination, shared decision making, shared accountabilities, and shared outcomes -- Conclusion -- Post-script -- References -- Manato‘a: The health of Pacific males -- Chapter summary -- Introduction -- Gender and indigenous masculinities in relation to men’s health -- Health statistics -- Talanoa-vā an integrated approach -- Case study 1: Masculine behaviours and social activities in the Pacific and abroad -- Case study 2: Resilience and wellbeing in the Pacific region -- Conclusion -- Suggested further readings -- References -- Mental health -- Chapter summary -- Introduction -- Intergenerational trauma -- Environmental determinants -- Antenatal period -- Postnatal -- Children and adolescents -- Adulthood -- Substance abuse and addictions -- Old age -- Use of mental health services -- Conclusion -- Worthwhile questions in the context of COVID-19 -- Key readings -- References -- Addiction: Alcohol, tobacco, and other drug use in Pacific communities across Aotearoa-New Zealand and the Pacific region -- Chapter summary -- Introduction -- Alcohol -- Homebrew -- Kava -- Tobacco -- Illicit drugs -- Betel nut -- Strategies targeting alcohol and substance use in the Pacific region -- Alcohol, tobacco, and other drugs, use for Pacific people in New Zealand -- Alcohol -- Tobacco -- Illicit drugs -- Gambling -- Kava -- Pacific alcohol and other drug services in New Zealand -- Conclusion -- References -- Fonua Ola: Re-imagining Pacific health promotion for the wellbeing of humanity and the planet -- Chapter summary -- Introduction -- As a poet, let me conclude this chapter with a poem that was inspired during the Covid-19 pandemic: -- Dawn, deep, devotional, beach reflections -- References -- Pacific health data in Aotearoa New Zealand: Users, sources, and important considerations -- Chapter summary -- Introduction -- Uses of Pacific health data -- Ethnicity data: Definitions and methods of output -- Definition of ethnicity -- Ethnicity classification -- Ethnicity data outputs -- Data sources -- Census -- Integrated data infrastructure -- Pacific data sovereignty -- References -- Healthcare horizons: Scanning the data to navigate the barriers and enablers for Pacific communities -- Chapter summary -- Introduction -- Long-term conditions -- Access to healthcare -- Ambulatory sensitive hospitalisations -- Medicine access equity and polypharmacy -- COVID-19: Pacific health service delivery leadership and opportunities -- Stigma and discrimination -- Cultural competence -- Language and communication -- Pacific health services -- Pacific workforce -- Conclusion -- References -- Longitudinal and life course research: Pacific birth cohort study -- Chapter summary -- Introduction -- Background context -- The PIF Study: A Pacific birth cohort study -- Study design -- Participants -- Theoretical framework -- Data collection -- Case study: Physical growth, metabolic risk, and potential lifecourse outcomes -- Case study: Role of cultural alignment and identity in maintaining wellbeing -- Knowledge translation and impact -- Current and future research with the PIF Study -- Conclusion -- References -- Prosperous Pacific families through Wha-nau Ora -- Chapter summary -- Introduction -- Background to Whānau Ora -- The concept of whānau ora and origins of the Whānau Ora Initiative -- Pasifika Futures -- Vision and purpose -- Leadership and governance -- Pasifika Futures strategy and outcomes framework -- Pasifika Futures outcomes framework -- Commissioning programmes -- The family journey -- Pasifika Futures results -- Pasifika Futures limited commissioning case study series -- Core navigation case study -- Navigating towards financial stability: The Fonua family’s success story with Pasifika Futures’ Whānau Ora partner Aotearoa Tongan health workers association -- Commissioning for innovation case study -- Navigating academic success: Josefa’s Whānau Ora educational journey at Otahuhu College -- Commissioning for communities case study -- Empowering cultural connection: Maria’s journey with Pasifika Futures’ Whānau Ora partner Tupumaiaga A Niue Trust -- Commissioning for community resilience case study -- Overcoming overcrowded living conditions and financial strain during COVID-19: Pasifika Futures’ Whānau Ora and community responsiveness and resilience partner: K’aute Pasifika -- References -- Mana-mai-le-lagi: Storying the importance of lived experience and community connection in health research with Pacific Rainbow+ communities -- Chapter summary -- Introduction -- Genesis: Lived experience -- Connections: The foundation of the project -- Conceptualising: In search of a research project and name -- Process: Community consultations, protocol, and the power of inclusive collaboration -- Decentring the main centres in community consultations -- Reciprocity in process -- Inclusive collaborations and dissemination to serve community practitioners -- Reflections of a research assistant on the Manalagi project consultation process -- Taualuga -- References -- Loimata Suamalie and Tapasa- Mo Aiga: Wayfinding sexual violence within a Samoan diaspora aiga -- Chapter summary -- Introduction -- Wayfinding Vā ethics and critical collaborative autoethnography -- Tapasā Mo Aiga model -- Our purpose: The triadic intentions -- To make healing accessible -- To make the impossible possible -- To make healthy structures for our families -- Wayfinding, vā, purpose, and sexual violence -- Wayfinding the quadrants through my siblings -- Seven sails: Equitable space and process -- Wayfinding the seen/scene and unseen -- Wayfinding the shame, silence, and hope for our Aiga -- Continuum -- References -- Notes -- Index.Open Access Electronic Book.Why do Pacific communities in Aotearoa-New Zealand continue to face significant health disparities despite decades of targeted government policy? In this landmark volume, editors Sir Collin Tukuitonga, Roannie Ng Shiu, and Patrick Thomsen bring together Pacific scholars to establish foundational markers for understanding the complex factors impacting community wellbeing. While Pacific peoples are among the most researched groups in the country, the contributors argue that current systems have failed to translate this data into equitable outcomes. The editors curate a deep dive into critical intersections of health, including maternal care, mental health, and the specific needs of Pacific youth, disabled people, and Rainbow+ communities. By centering the voices of Pacific experts, this work serves as both a critique of the status quo and a roadmap for a more efficient, equitable health system that treats Pacific wellbeing as an urgent public priority. This book is essential reading for students of Pacific health and professionals operating within the public health sector. It is a vital resource for anyone working to improve health outcomes within Aotearoa-New Zealand or across the broader Pacific region.Also issued in Print and PDF version.EnglishDescription based on Publisher's website, viewed April 02, 2026.Pacific IslandersHealth and hygiene.Pacific IslandersMedical care.Electronic books.Shiu, Roannie Ng,author.Thomsen, Patrick,author.Keil, Moeata,editor.Thomsen, Patrick,editor.Print version: Understanding Pacific peoples health and wellbeing challenges in Aotearoa New Zealand.First edition.New York, N.Y. : Lived Places Publishing, 20269781918026276(OCoLC)1566933011Pacific Islander Studies (Lived Places Publishing)livedplacespublishinghttps://doi.org/10.62859/9781918026276 04120nam a22005418i 45009781918026054IN-ChSCO20260212145055.0m|||||||||||||||||cr |n||||||||n260212s2026||||nyu|||||o|||||||||||eng||9781918026030(print)9781918026054(ebook)9781918026047(ePub)10.62859/c.172069DOI(OCoLC)1569915095IN-ChSCOengrdaengHV1559.A85305.90823Mellifont, Damian,author.Lived experience of disability :disability research and Australian disability policy /Damian Mellifont, Jennifer Smith-Merry, edited by Damian Mellifont.Disability research and Australian disability policyFirst edition.New York, N.Y. : Lived Places Publishing,2026.©20261 online resource (230 pages) :illustrations.texttxtrdacontentcomputercrdamediaonline resourcecrrdacarrierDisability Studies"This is an open access publication, available online and distributed under the terms of a Creative Commons Attribution, Non-Commercial, No Derivatives 4.0 International license (CC-BY-NC-ND 4.0)".Includes bibliographical references and index.Content warning -- Learning objectives -- Introduction -- Chapter 1 Who has lived experience of disability? -- Chapter 2 What does ‘good’ disability policy look like? -- Chapter 3 Seeing the person before the problem: Using lived experience perspectives to eliminate restrictive practices -- Chapter 4 Policies to address information deprivation for people with disability -- Chapter 5 Epistemic gaps and policy absences: The plight of older people living with dual sensory impairment -- Chapter 6 Charcot-Marie-Tooth disease in rural Australia: A retrospective analysis of research and policy observation -- Chapter 7 The lived experience of neurodivergence in academic research studies: A neuro-affirming methodology -- Chapter 8 Towards a comprehensive research agenda: Fostering disability inclusion in research and innovation at the University of Queensland -- Discussion questions -- Recommended further reading -- Index.Open Access Electronic Book.Lived Experience of Disability, edited by Damian Mellifont, brings together voices of people with lived experience and committed allies to explore critical issues in Australian disability policy. Covering topics from restrictive practices and healthcare disparities to barriers in research participation and academic inclusion, this book examines how policy intentions often fall short of meeting real needs. With insights on linguistic deprivation, rural challenges, sensory impairments, and disability leadership, it not only critiques current systems but also points to evidence-based directions for reform. This is more than an academic resource—it is a call for genuine inclusion, representation, and systemic change. Lived Experience of Disability is ideal for students, researchers, policymakers, and practitioners in disability studies and policy.Also issued in Print and PDF version.EnglishDescription based on Publisher's website, viewed February 12, 2026.People with disabilitiesServices forAustralia.People with disabilitiesGovernment policyAustralia.Sociology of disabilityAustralia.Electronic books. Smith-Merry, Jennifer,author.Mellifont, Damian,editor.Print version: Lived experience of disability : disability research and Australian disability policy.First edition.New York, N.Y. : Lived Places Publishing, 20269781918026030(OCoLC)1569883228Disability Studies (Lived Places Publishing)livedplacespublishinghttps://doi.org/10.62859/c.172069